BLOGS

Lauryn Manoni, 28

Published on: 19/01/2023

I could never see more than light and movement in my left eye. I was born with PHPV (Persistent Hyperplastic Primary Vitreous). I think today it's called PFV (Persistent Fetal Vasculature). It's incredibly rare, and honestly, I still don't fully understand it. It caused a congenital cataract that messed with my eye's development. Because of that, my eye was also smaller (Microphthalmia).

Microphthalmia

Jenna Bernard, 25

Published on: 29/08/2022

I was made fun of a lot when I was younger, and even a little through college. As an adolescent, that was really hard and I let the names and words get to me. I thought my worth was based on how I looked. I thought if my face couldn't look "normal" or "good" then I had to overcompensate and look better everywhere else.

Microphthalmia

Maverick, 7 months old

Published on: 13/06/2022

At Maverick’s first outpatient appointment at only 4 weeks old, the doctor performed a red reflex test. His right eye had a negative red reflex. The doctor explained to us it could be a cataract or retinoblastoma.

MicrophthalmiaCaregiver

Dee Makar, 50

Published on: 11/04/2022

I was born with an eye that had not developed properly. The doctors were unsure if there was a normal eye sitting behind that hadn’t formed - but there wasn’t.

Microphthalmia